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Family Conference and AGM

Family Conference and AGM

From the 17th to the 20th August 2018, invited guests, Parliamentarians, delegates, members and supporters of the Brittle Bone Society gathered in Dundee to celebrate our 50th Anniversary, and be a part of a long weekend of events. We heard talks by by leading NHS healthcare professionals, and listened to real life stories of people who live with Osteogenesis Imperfecta.

Thursday evening, Vice Chairman John Phillips and Chair of our medical Board Prof Nick Shaw welcomed international speakers to a dinner on the HMS Unicorn Ship berthed in Dundee, a thank you for those who travelled from as far afield as Canada, USA and Europe.

Friday played host to our CPD certified Scientific Symposium, in which healthcare professionals were invited to talk and participate in a number of presentations by leading OI healthcare professionals. Delegates enjoyed updates and talks from leading healthcare professionals dedicated to researching, treating, and managing patients with OI.

On the Friday evening we launched our History Bones Exhibition with special guests the Lord Provost of Dundee Ian Borthwick MBE, and Ms Jenny Hanley TV presenter of Magpie fame! Our historical exhibition navigates the world of OI, and how the BBS has fed in to that over the past 50 years, and was held in Dundee Central Library during September 2018 for public viewing.

On Saturday we hosted our usual popular family conference events, with talks, workshops, and Q&A sessions to allow members and supporters of the BBS to engage with all things OI, taking part in shaping how we get involved in research, highlighting how , BBS may fund projects in the future, and hearing personal stories from people who live with the condition. This jam-packed day was rounded up nicely by an evening of celebration and fun. Delegates were entertained by local dance group the Angus Kilties featuring member Monique Jarret and Caitlin McNiven with a marvellous display of highland dance. Our Gala Awards Dinner saw us present a succession of worthy award winners:

The BBS Young Champion Awards

Miss Olivia Jones

Mr Jack Lewington

The BBS Professional Volunteer Award

Mr David Queen

The BBS Team Awards

Wilma Lawrie, Yvonne Grant, and Cameron Allan

Medics on the March (Dr Paul Arundel, Dr Stephen Giles, Professor Lars Savendahl, Dr Talat Mushtaq & Dr Jeremy Allgrove joined by Mr Paul Connor)

The BBS Outstanding Service Award

John and Gertie Farmery

And last but certainly not least…

The BBS Family Affair Award 

Steve, Leanne, Max, and Cove Edney

The fabulous Edney Family and Friends netted the BBS over £60k in fundraising and outstanding awareness raising! And to top it all off,our table top prize draw raised a stunning £1,115.23!

Sunday rounded up the family events with well attended workshops and talks, encouraging discussion between BBS members and supporters, and ultimately playing part in our strategic planning for the next few years of the BBS.

BBS CEO Patricia Osborne and SDO Coreen Kelday were part of the OIFE delegation to attend their business meeting and AGM. Patricia was asked to address the OIFE AGM delegates at their Sunday celebratory dinner on the occasion of their 25th Anniversary. Trustee Yvonne Grant was also in attendance as VIP guest.

BBS Trustees and staff were delighted to see so many guests from not just the UK and Ireland, but from 19 countries attend their event in Dundee. It was an honour that the Osteogenesis Imperfecta Federation Europe (OIFE) held their AGM to cap off our weekend of events.

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