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BBS Westminster Parliamentary Reception

BBS Westminster Parliamentary Reception

On Wednesday 6th June, Brittle Bone Society staff attended a Parliamentary Reception at Westminster in celebration of the charity’s 50th anniversary. The event, kindly sponsored by Lord Kevin Shinkwin and hosted by Vice Chairman John Phillips and CEO Patricia Osborne, with thanks to grant funding from Kyowa Kirin, saw the presentation of the Brittle Bone Society Excellence Awards for 2018.

The BBS received a very special letter from the Prime Minister Theresa May MP, who apologised at being unable to attend however sending fulsome support for the event and a further letter outlining her appreciation of the work being done at the BBS and her congratulations to the winners of the BBS Excellence Awards.

The reception was well attended by senior Parliamentarians including Secretary of State for Work and Pensions Ms Esther McVey MP and a great number of MPs and peers from the House of Lords, with support from invited guest presenters: Sec. of State for Work & Pensions Esther McVey MP, Lord Shinkwin, Lord McAvoy, Mark Francois MP, Charles Walker MP and Phillip Davies MP and assisted by Richard Toner, Samantha Renke, Abbi Brown, Shani Dhanda, Gem Turner, Gareth Cumming, Jhon Bateman, as well as young Max and his Mum Leanne Edney who helped us present the trophies!

The winners of the Brittle Bone Society Excellence Award 2018 were:

  • Birmingham Children’s Hospital, received by Professor Nick Shaw
  • Sheffield Children’s Hospital, received by Professor Nick Bishop
  • Great Ormond Street Hospital, received by Dr Catherine DeVile
  • Bristol Royal Hospital for Children, received by Dr Christine Burren
  • Royal Hospital for Children in Glasgow, received in absentee
  • Royal National Orthopaedic Hospital in London, received by Dr Richard Keen
  • Botnar Research Centre at Oxford University, received by Dr Kassim Javaid
  • Paediatric Osteogenesis Imperfecta National Team, received by Mark Heathfield

Events like this help us raise awareness of OI, and the requirement for improved multidisciplinary healthcare, particularly in the field of rare metabolic bone conditions, and we are incredibly grateful for the platform Lord Shinkwin gave us to do this. In particular, we highlighted the need to bring adult services for the treatment and care of OI to the same standard that paediatric care is currently run nationwide.

The day was also shared with our friends in the wider rare bone world of HPP (Hypophosphotasia) and XLH (X-linked Hypophosphatemia). We invited Meryl from Softbones UK and Oliver from XLH Network to take a stand at the parliamentary event – emphasising to our visitors on the day that along with those in the OI community – we share the same clinicians and that someday we hope services for adults will improve across the board.