Who We Are

The Brittle Bone Society is the sole organisation set up to address the needs of people born with Osteogenesis Imperfecta (OI) in the UK and Republic of Ireland.

Our charity wants a world in which the needs of people in the UK and the Republic of Ireland living with Osteogenesis Imperfecta are understood, respected and fully met.

We will work towards improving the quality of life for people diagnosed with OI in the UK and the Republic of Ireland, providing advice, signposting and information, providing financial support for wheelchairs and equipment and raising awareness of the condition. We will also support and work with specialist healthcare professionals.

We recently began exploring the possibility of working with other rare bone groups, to find out more visit Rare Bone Groups (X-linked Hypophosphatemia, Fibrous Dysplasia, HPP)

NB. Any views expressed on this website will be general in nature, do not constitute medical advice and will not be a substitute for taking advice from your usual medical practitioners.