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RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital and fought off the “beast from the east” to get there, albeit arriving a little later than expected.More >

9th International Conference on Children’s Bone Health (ICCBH) date announced

  • Posted on Feb 2, 2018

The ICCBH are delighted to announce that they will return to Salzburg for the 2019 conference. This follows on from last year’s successful conference in Würzburg, Germany, which was attended by over 400 delegates fromMore >

Celebrating Rare Disease Day at the Scottish Parliament

  • Posted on Mar 13, 2017

The Brittle Bone Society attended the Scottish Parliament on 1st March to celebrate Rare Disease Day. Professor Stuart Ralston showcased the work involved in the TOPaZ trial and his collaboration with the BBS. During our visit,More >