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Category: Research


Findacure Rare Showcase

  • Posted on Oct 19, 2018

The BBS team attended the Findacure Rare Showcase in Glasgow on Wednesday 10th October, 2018. Patient groups, healthcare professionals, pharmaceutical companies, and the life sciences industry came together to network and discuss rare conditions, sharing theirMore >

Personal Independence Payments (PIP) Survey

  • Posted on Sep 19, 2018

People affected by Osteogenesis Imperfecta may deal with the Government welfare system to assist with the extra costs associated with the condition. Before 2014, this assistance was received through a Disability Living Allowance (DLA), butMore >

Family Conference 2018: We want your feedback!

  • Posted on Sep 19, 2018

Thanks to fabulous BBS facilitators from Conference Dundee 2018. Before we can reveal our exciting plans for 2019’s Annual Family Conference, we still need feedback from the one just passed! Head over to our surveyMore >

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