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Support we provide

Support we provide

Information for your patients

We have a range of information on all aspects of Osteogenesis Imperfecta from factsheets to talks on YouTube. We also offer practical and emotional support. See our information and resources page for more information.

Equipment grants

We assist financially with the purchase of equipment which the NHS is unable to provide. This could be things such as manual and powered wheelchairs, trikes, prams, lay flat car seats and other types of equipment. We do not fund higher education fees or ‘white goods’ e.g. hobs, cookers or fridges, soft furnishings or building works. Grant applications must be accompanied by a letter of support from a healthcare professional.


We run various events across the country in conjunction with local hospitals; from one day events to a weekend conference. You can find out more about our events here.

Peer support

We have a number of support groups across the UK. We can link people to Facebook groups, and we can introduce individuals to others going through similar experiences. Contact our Support Development Officer for more information.