Living With OI
This page is a space where people with OI can share their stories to give an insight into what life is like living with this rare genetic condition.
If you have a a story you would like to share please click here and fill out the short online form. Alternatively you can email firstname.lastname@example.org
Cool Bones Kids - Educational video
Have a look at our Educational film, created by children age between 11 and 15 who live with OI.
Parents: Life with OI Kids
Here parents discuss family life with children who have Osteogenesis Imperfecta, whether they had it or not. Topics include the diagnosis, their reactions, their child's nursery life, sibling reactions and sources of help like the BBS Support Groups and more.
Jordanne Whiley has type IV Osteogenesis Imperfecta and from a young age has been a keen tennis player. Jordanne has competed in many international tournaments, becoming an inspiration for lots of young people.
Tom's Euro 2016 Travels
Tom and his brother have created a blog about their travels around France watching the football. To read more see their link
Penny Clapcott has type III Osteogenesis Imperfecta and despite numerous fractures over the years she has managed to achieve her dream of becoming an aerial performer. In 2012 Penny had the opportunity to perform in the Paralympic Opening Ceremony in front of millions of viewers. Click here to read the full story or watch Penny in action here.
Lewis Thomas has type I Osteogenesis Imperfecta and wanted to tell his story about his OI journey and the amazing people he has met along the way. Click here to read the full story.
In 2014 Maleah Pegg became an internet sensation with the creation of the video 'Me, Myself and OI' The video explains what Osteogenesis Imperfecta is and helps to raise awareness worldwide.
Steven Hastings has type III Osteogenesis Imperfecta and attended BBS' VOICE 2012 event in Edinburgh which boosted his confidence and encouraged him to pursue his dream of becoming an extra on TV. A few months later he was featured in River City wearing his VOICE 2012 hoodie! Click here to read the full story.