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New Nursey & Pre-School Factsheet available now!

Our latest factsheet covers advice for nurseries and pre-schools.

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TV Opportunities

Endemol Shine North are looking for families to take part in the new CBBC series Ali A's Superchargers. BBC Two's Big Life FIx i…

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Update on the European Reference Network (ERN) for rare bone diseases (BOND)

The new European Reference Network (ERN) for rare bone diseases (BOND) was kicked off at the third ERN conference in Vilnius, Li…

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Celebrating Rare Disease Day at the Scottish Parliament

BBS attended Scottish Parliament on 1 March to celebrate Rare Disease Day. Professor Stuart Ralston showcased the work involved …

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BBS response to recent reports on Bisphosphonates

The Brittle Bone Society has received a number of enquiries further to a recent programme, Radio 4. The BBS's medical advisory c…

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BBS Family Conference & AGM 2017

This year's BBS Annual Family Conference & AGM will take place on the weekend of the 11th to 13th of August, at the Crowne Plaza…

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Scientific Symposium

The 1st Brittle Bone Society Scientific Symposium will be held February 24, 2017

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Wheelchair Dancing With the Stars

Monique Jarrett tells the BBS how VOICE inspired her to get involved in wheelchair dancing.

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Adult OI Services’s Consultation Meeting

The BBS held our first consultation meeting with OI members. There was a good mixture of ages represented from England, Scotland…

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CLIMB Conference: Transition and Adult Care

On Saturday 8th October BBS Communications Officer Karl Henry attend the CLIMB (Children Living with Inherited Metabolic Disease…

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Bristol Children's Hospital Family Day

Bristol Royal Hospital for Children, metabolic bone team hosted an OI family day in October at Bristol. Coreen, BBS Support Deve…

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NIHR Think Research Patient Day

On Wednesday 12th October BBS members Jhon Bateman and Gareth Cumming attended the NIHR Think Research Patient Day on behalf of …

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Bone Health & OIFE Conference 2016

Patricia Osborne (CEO) and Coreen Kelday (SDO) were invited to a series of important updates meetings and seminars with colleagu…

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