welcome

Adult OI Services’s Consultation Meeting

The BBS held our first consultation meeting with OI members. There was a good mixture of ages represented from England, Scotland and Wales representing all sections of the OI family. This group will continue to work with us in evaluating the data needed on this project and we hope they can deliver a workshop at our next conference and AGM

Dr Richard Keen from Royal National Orthopaedic Hospital is Chairman of the Adult OI Project Group and Professor Faisal Ahmed from Royal Hospital of Sick Children Glasgow, Trustee of the BBS attended this meeting. We had apologies from allied healthcare professionals who had travel issues and unfortunately our friends from Northern Ireland and Republic of Ireland weren’t able to make this first meeting. 

We will work tirelessly to collect strong evidence for NHS England demonstrating the high unmet need that exists for an Adult OI Service. We will also be looking at Clinical Care Standards. This will be a long process, but we ask members to join us on this important journey.  We will need your help by getting involved in further consultation events, completing surveys and assisting us to gather relevant information to form a suitable service for the needs of the OI community.