Consultations & Focus Groups
Adult OI Focus Group
We are working hard to gather evidence which we can submit to NHS England for a new Adult OI Service. Being part of a Focus Group will help both the BBS and healthcare practitioners in designing new treatments/services. (Please help us make the case for a service for your OI child).
There are some important Research studies and trials already on-going and due to commence. Your involvement, should you choose to help, may include:-
Ethics: helping approve the types of questions
Interviews: talking to researchers
Participation: being involved in trialing new treatments/studies
If you are interested in receiving further information on either of the above or would like to become involved please complete our Contact Form.
Kids Club Hospital Packs
The BBS are working hard to secure funding for much needed Children's Hospital Packs which will form part of being a member of the BBS Kids Club.
These Packs will be distributed by us to children during their hospital stays. We hope these packs will make your children’s experience just that little bit brighter.
(the finished items will be branded with a BBS logo)
We would LOVE to know your views and suggestions of the recommended items we picked for inclusion.
Please complete this Feedback Form and tell us what YOU think!