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History Bones Exhibition

History Bones - Your part in the OI Story

In 2010 Trustees of the Brittle Bone Society arranged to formally hand over and entrust their precious archives 'History Bones' to the University of Dundee for safe keeping and for posterity.

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As a UK charity based in Dundee, the History Bones collection will show strong local significance whilst also reflecting the impact of the charity both across the UK and on the development of similar rare bone disease organisations around the world. 

The Brittle Bone Society was the first registered OI charity anywhere in the world. We were instrumental in assisting our friends at OIF in the USA who were set up soon after us, and some years later we helped our colleagues at OIFE - the umbrella organisation that represents patient groups across Europe.

We are excited to work with the University of Dundee to host and exhibit these materials in 2018 in Dundee at the Apex Hotel, the Dundee Library and elsewhere in the city (soon to be revealed). Later we hope to publish a unique and invaluable online resource for individuals and healthcare professionals alike - containing film, oral recordings, photos, testimonies and much more. 

However there are still some gaps in what is currently held and this is where YOU CAN HELP! Contact bbs@brittlebone.org and let us know what treasured item or story you can send to us.

The History Bones archive is significant and holds an important catalogue of items that contain interesting and irreplaceable information and references that make up the story and history of the Brittle Bone Society Charity. The archive also documents the fascinating story of medical developments and treatment over the years that covers the condition of Osteogenesis Imperfecta (OI).

The BBS 50th Celebration Exhibition will chart the dramatic changes in fundraising; improved outcomes for people with OI in terms of their overall independence; mobility; general attitudes towards disability - changes in language; changing landscape of charitable organisations; styles of marketing, communication methods before social media - and so much more!

History Bones will document the story of whole families’ connections to the charity, about loyal membership and amazing supporters. We will also share information around medical advancements and breakthroughs achieved in research. 

PLEASE get in touch with us with your memories, stories, materials and any old equipment you could part with, and ask family members too.  

Calling on Kids   

YOU could film/interview your grandparents.  You never know you may even win a prize for the best historic story “pre 2000”.

Topics we are interested in are:

  • How has the BBS influenced you?  (ie did you receive a typewriter from the Magpie appeal, do you remember having a spacesuit, do you still have one in your attic?)

  • Pre NHS Stories, treatments, hospital stays in the “olden days!”

  • Work – attitudes in the work place and how they have changed over the years

  • School –  eg: did you go to main stream school or not, what education did you receive

  • Relationships – with family, friends, partners, work or school collegues and the BBS and attitudes which you faced.

  • Social welfare and benefits  - how have things changed since 1968

  • Holidays and Travel, Sports and other hobbies.

PLEASE get in touch we really do want to hear from you. Whether it’s your story or a family member’s story.  Feel free to contact the BBS office and staff will be happy to discuss the project in more detail. Tel 01382 204446 or email bbs@brittlebone.org