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LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fractures in children and adolescents with Osteogenesis Imperfecta. If you would like more information see contact info below.

Children and adolescents may be eligible to participate in the study, provided the following criteria are met:

  • Be between 2-17 years of age (inclusive)

  • Have been diagnosed with Osteogenesis Imperfecta types I – IV

  • Have a specific fracture history (to be discussed with/determined by your doctor)

Global/UK screening & enrolment update as at Feb 2017

  • Total global patients planned: 150/Total UK patients planned: 10

  • Total global patients enrolled: 23/Total UK patients enrolled: 4

UK participating sites & email contact details

  • Sheffield Children’s Hospital, Principal investigator: Prof Nick Bishop. Study coordinator contact email: kate.jones@sch.nhs.uk

  • Birmingham Children’s Hospital, Principal investigator: Prof Nick Shaw. Study coordinator contact email: wendy.donoghue@bch.nhs.uk

  • Bristol Royal Hospital for Children, Principal investigator: Dr Christine Burren. Study coordinator contact email: Rachel.helyer@uhbristol.nhs.uk

  • Royal Hospital for Children, Glasgow, Principal investigator: Prof Faisal Ahmed. Study coordinator contact email: barry.milligan@ggc.scot.nhs.uk

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