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Abbi Brown Guest Blog: Getting into fitness

  • Posted on Mar 20, 2018

What were your New Years’ resolutions this year? Like most of the country, mine were all the usual: get more sleep; drink more water; spend less time in the pub and more time in theMore >

RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital and fought off the “beast from the east” to get there, albeit arriving a little later than expected.More >

Gem Turner Guest Blog: It’s Our Time To Shine

  • Posted on Feb 28, 2018

This week we’re talking about Rare Disease Day, and of course – it’s our time to shine. This is our time to talk about brittle bones to everyone we know/don’t know because that’s the whole point,More >

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