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Shani Dhanda Guest Blog: BBS Conference 2018

  • Posted on Oct 16, 2018

The 17th August 2018 had finally arrived – I had been looking forward to this weekend for months! After a day’s worth of travelling from London to Dundee, me and my family arrived at theMore >

Findacure Rare Showcase

  • Posted on Oct 19, 2018

The BBS team attended the Findacure Rare Showcase in Glasgow on Wednesday 10th October, 2018. Patient groups, healthcare professionals, pharmaceutical companies, and the life sciences industry came together to network and discuss rare conditions, sharing theirMore >

Personal Independence Payments (PIP) Survey

  • Posted on Sep 19, 2018

People affected by Osteogenesis Imperfecta may deal with the Government welfare system to assist with the extra costs associated with the condition. Before 2014, this assistance was received through a Disability Living Allowance (DLA), butMore >

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