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RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital and fought off the “beast from the east” to get there, albeit arriving a little later than expected.More >

Gem Turner Guest Blog: It’s Our Time To Shine

  • Posted on Feb 28, 2018

This week we’re talking about Rare Disease Day, and of course – it’s our time to shine. This is our time to talk about brittle bones to everyone we know/don’t know because that’s the whole point,More >

Rare Disease Day Reception at Scottish Parliament

  • Posted on Feb 21, 2018

Communications and Marketing Officer Karen, and Intern Jhon attended the Scottish Parliament on 20th February to celebrate Rare Disease Day arranged by Rare Disease UK. We heard from a range of speakers including Bob DorisMore >

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