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Whole Genome Sequencing Survey

  • Posted on Oct 8, 2018

Share your views on Whole Genome Sequencing and the NHS Genomics England has commissioned Genetic Alliance UK to seek the views of patients and carers around the introduction of Whole Genome Sequencing (WGS) into theMore >

Help Steer BBS Research

  • Posted on Sep 17, 2018

During our Annual Family Conference in Dundee in August 2018, we had an excellent workshop which focused on the research you want to see done in the field of OI. We received great suggestions andMore >

Pain Study by Fundación Ahuce

  • Posted on Sep 13, 2018

A NEW STUDY ABOUT PAIN IN OI The Spanish research foundation Fundación Ahuce has launched a new research project in collaboration with the University of Valencia. The BBS encourages as many people with OI asMore >

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