Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-driven research.
For the study, a secure web-based database will be used to collect and store data, and as the primary mode of interaction with study participants.
“Being involved in this new study, where we have a few basic medical tests and fill in questionnaires on a database, is an exciting opportunity for all of us. Our involvement, as individuals, will potentially work towards getting better treatment for OI in the future – and how fantastic would that be?! I hope as many members as possible will take this opportunity up, as the more information provided the better the study will be.” – Elaine Rush