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Information & Resources

Information & Resources

The Brittle Bone Society produces a range of resources which are endorsed by healthcare professionals from the NHS Centres of Excellence, including the Paediatric Osteogenesis Imperfecta National Team (POINT), and by our Medical Advisory Board.

Our educational resources are designed to give anybody affected by OI, and professionals working with someone who has OI, a source of reliable information.

Factsheets

You can download our factsheets for free by clicking on the links below. Hard copies can be sent out for free, however, a contribution towards production costs and postage will enable the Brittle Bone Society to continue its vital work.

General information

Information about Osteogenesis Imperfecta
Bisphosphonate Treatment
Dental Care
Hearing Loss
Adults with OI

Genetics and Osteogenesis Imperfecta

To find a Medical Genetics Centre near you, click here.

Information for children and schools

Caring for Infants with OI
Managing Fractures in Children

Wheelchairs
Advice for Nurseries and Pre-Schools
Advice for Primary Schools
Advice for Secondary Schools

Participation in Physical Education (PE)

Talks on our YouTube channel by healthcare professionals at various BBS events

General Information – Paediatric Talks
General Information – Adult Healthcare
Orthopaedic Surgery
Genetics
Research
Pain
Emotional Wellbeing

Information on travel (not endorsed by UK healthcare professionals)

Insurance for travelling abroad – a list compiled by the Brittle Bone Society based on information given to us over the years from other people with OI. We always advise it is worth shopping around for insurance to a find a deal that suits you.

OIFE Passport
– a useful document to have when travelling which explains OI in over 20 different languages. Please contact us if you would like a copy.

Government website section on “Transport if you’re disabled” has really useful information from booking accessible travel on trains, accessible stations, and national railcards. It is also worth checking the National Rail website.

Government website also has a section on foreign travel for disabled people.

Tryb4uFly is a service for disabled children and adults in the UK. They provide cabin assessments, information about flying with a disability and hire equipment to make your journey easier.

Euans Guide – a website which features disabled access reviews from disabled people, their families, and friends.

NB. Any views expressed on this website will be general in nature, do not constitute medical advice and will not be a substitute for taking advice from your usual medical practitioners.

  • Make a Difference

    With your support, the Brittle Bone Society can develop more resources to support people affected by Osteogenesis Imperfecta.

  • What our members say

    “I want to say that the BBS information leaflets have been incredibly helpful. I use them regularly to help with school & trips. If your child has mild OI this could be the only specialist help and advice that you get”