Local Support



When people live with a rare and complex health issue like OI, it is easy to feel alone and isolated. The Brittle Bone Society has a number of Support Groups throughout the UK and Ireland. These are community based groups of people affected by OI.  They gather to enjoy each other's company, share information, and experiences and socialise with others who understand the OI story.


These gatherings are social get-togethers, but speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organise local fundraisers and raise awareness about OI in their communities.


All groups are run by trained Volunteer Co-ordinators.  If you are interested in setting up a group please go to  our volunteer section for more information.


Alternatively if you would like to find our more about what is happening in your area please get in touch with your local Volunteer Co-ordinator - see the list below.

Legal Disclaimer
We provide information on our website for general information only. The content is not intended to be and should not be used as a substitute for professional medical advice, diagnosis or treatment. Users should not take any action or refrain from taking any action because of any information on our Website. Users should always seek the advice of their doctors and of other qualified health professionals concerning OI and other medical conditions. So far as permissible by law, the Brittle Bone Society does not accept any liability to any person relating to the use of any information on this Website.


Maureen Groom

please contact BBS on

01382 204446 for details


Northern Ireland 

Vincent Hunter 

Email: vhunter64@googlemail.com 

Tel: 07806 775570


North East 

Angie Stewart and Lisa Hedley 

Email: angiestewartsemails@gmail.com

or lisahedley23@live.co.uk


Preston and the North West 

Diane Crookham-Burke

Email: dicb1105@aol.com

Republic of Ireland

Helen Lehane

email: helenlehane@hotmail.com

Tel: 08682 37740



Marcus and Karen Donald 

Tel: 01698 352478



Kat Watkins

email: kat1986wales@hotmail.com

Tel: 07739 019633