The Brittle Bone Society are campaigning for specialised adult OI services.
We have close links with some NHS adult specialists who have an interest in Osteogenesis Imperfecta and other metabolic bone conditions such as HPP and XLH.
There are currently no adult centres that run a multi-disciplinary service and current specialists tend to be either Endocrinologists or Rheumatologists. We are currently talking with specialist and NHS commissioners to develop and improve the current services available. To find out more see our Campaigns page.
Please note to be seen by a specialist at any of the below centres you must first request a referral from your GP.
Addenbrooke’s Hospital, Cambridge
Bristol Royal Infirmary
Manchester Royal Infirmary
Newcastle upon Tyne Hospitals
Northern General Hospital, Sheffield
Nuffield Orthopaedic Centre, Oxford
Royal National Orthopaedic Hospital, London
Queen Elizabeth Hospital Birmingham
The Republic of Ireland