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A Message from the Bristol Highly Specialised Osteogenesis Imperfecta Team at University Hospitals Bristol and Weston NHS Foundation Trust

  • Posted on Jul 7, 2020

These last months have certainly been extremely different from what anyone foretold that 2020 would bring. It has cast everyone into unknown situations and presented new challenges. Right from very early on in the Covid-19 pandemic, we saw it was really important to still be available to the children and families. There were so many understandable questions arising and advice to be given. And also several newborns needing our involvement from the outset – not things that ‘can just wait’. We had to be inventive and use new ways of working. During this period, members across our multi disciplinary team reached out to families via telephone calls, video calls and, where appropriate, face-to-face. Our therapy and nursing team is currently designing this year’s summer group programme that we offer children and young people in Bristol and the South West of England. Yes, it will have to be delivered differently, but we believe that it is an important part of enabling and helping children be their best selves in readiness for school return in September and helping them build on core strength and mobility and fun skills of play and social interaction – whilst all being managed digitally, but still to be a fun and beneficial experience.

Dr Christine Burren

University Hospitals Bristol and Weston NHS Foundation Trust