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History Bones Project

History Bones Project

The History Bones archive is a collection of valuable information documenting the history of the Brittle Bone Society, including newsletters, conference papers, and fundraising initiatives spanning our 50-year history. Working with the University of Dundee, we were able to exhibit some of these materials during our annual conference in 2018, and was exhibited for a time at Dundee Central Library in September 2018.

The exhibition charts the dramatic changes in fundraising; increased independence for people with OI; mobility; changes in language; changing landscape of charitable organisations; styles of marketing and communication methods before social media; and so much more!

Even though we have held our first exhibition already, there are still some gaps in our history and knowledge, and this is where you can help! Please get in touch with us with your memories, stories, materials and any old equipment you could part with, and ask family members too. Contact us and let us know what treasured item or story you can send to us. 

We received some wonderful accounts of how it was for people growing up with OI in the past, you can read them by clicking on the links:

Liz’s Story

David’s Story

Elaine’s Story

We took extracts of the History Bones exhibition to Dublin and Belfast in November 2018, click here to find out more.

The Brittle Bone Society plans to take the exhibition on tour throughout the UK during 2019. If you know of a venue of event that would like to host our exhibition, get in touch with us at


  • Members' Stories

    Some of our members have already sent us stories and photos for our History Bones campaign! Read about what it was like for Elaine growing up with OI.

  • Events

    With a series of events taking place across the UK & Ireland each year, our events bring people with OI & healthcare professionals together.