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Article for Rare Revolution Magazine

  • Posted on Sep 29, 2021

“Turning the talk into action: We must have robust, fit for purpose and funded solutions now” Chief Executive, Patricia Osborne contributed to an article for Rare Revolution Magazine about provision of services and support forMore >

Open Access Government Article

  • Posted on Sep 8, 2021

The Brittle Bone Society were delighted to receive a request to provide an article about Osteogenesis Imperfecta for the September edition of Open Access Government online publication. Chief Executive, Patricia Osborne talks about the condition,More >

European Reference Networks

  • Posted on Oct 18, 2017

European Reference Networks OI & ERN BOND The ERN-BOND have developed a European Registry for Rare Bone and Mineral Conditions called EuRR-Bone. Registries are a type of research study where people can be tracked over timeMore >

A Message from the Highly Specialised Osteogenesis Imperfecta Team at Sheffield Children’s Hospital

  • Posted on Aug 10, 2020

In common with every hospital and NHS facility across the UK, the pandemic has had an impact on how we in Sheffield work and deliver services. At a national level, the number of children seenMore >

A Message from the Highly Specialised Osteogenesis Imperfecta Team at Great Ormond Street Hospital

  • Posted on Jul 15, 2020

Great Ormond Street Hospital (GOSH) worked in close partnership with our North Central London colleagues and Trusts to provide care for children from surrounding hospitals during the COVID-19 pandemic. We restructured parts of the hospitalMore >