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Category: News


Chris Lynch’s Documentary- The Disability Paradox

  • Posted on Nov 23, 2020

Chris Lynch has created a film which explores his very personal journey on life with Osteogenesis Imperfecta. This  film explores fundamental questions about what makes us happy and how we can improve the quality ofMore >

A Message from the Highly Specialised Osteogenesis Imperfecta Team at Sheffield Children’s Hospital

  • Posted on Aug 10, 2020

In common with every hospital and NHS facility across the UK, the pandemic has had an impact on how we in Sheffield work and deliver services. At a national level, the number of children seenMore >

BBC Children in Need – Helping Children Learn to be Money Smart

  • Posted on Aug 7, 2020

    BBC Children in Need have been investigating, in partnership with HSBC, the relationship children and young people have with money, and want to help improve their understanding of looking after their finances. Whether it’sMore >

A Message from the Highly Specialised Osteogenesis Imperfecta Team at Great Ormond Street Hospital

  • Posted on Jul 15, 2020

Great Ormond Street Hospital (GOSH) worked in close partnership with our North Central London colleagues and Trusts to provide care for children from surrounding hospitals during the COVID-19 pandemic. We restructured parts of the hospitalMore >

A Message from the Birmingham Highly Specialised Osteogenesis Imperfecta Team at Birmingham Women’s and Children’s NHS Foundation Trust

  • Posted on Jul 7, 2020

Our doctors, nurses and therapists were required to help with the high risk areas around the hospital at the peak of the pandemic. We however prioritised our service by ensuring some of the team membersMore >