On Saturday 8th October BBS Communications Officer Karl Henry attend the CLIMB (Children Living with Inherited Metabolic Diseases) Conference: Transition and Adult Care. The one-day event saw a variety of speakers discussing a wide range of topics.
The UK strategy for rare diseases and transition
The differences between paediatric and adult care
Bridging the gap to independent living
While the event was aimed at those living with a rare condition, it also provided the charity the opportunity to form a stronger alliance with those working within the rare disease community. The event also gave the BBS the opportunity to network with other health care professionals working with similar rare bone conditions.