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Conference 2019

  • Posted on May 7, 2019

2019 Family Conference and AGM was held at the DeVere Hotel, Wokefield Estate, weekend of 13th September.

As always this was a fun packed weekend full of talks, entertainment, workshops and activities for all ages.

Friday evening we hosted an Eggheads Quizz and were delighted that Barry Simmons, one of the Egghead Quizz masters could join us,  along with our very own Wishbone Warriers team, who competed against the Skeleton Crew.

Saturday morning saw host to a variety of talks – you can view the full Agenda here .  We were joined by representatives from other rare bone groups such as the HPP, XLH, FDDS and RGA communities as well as a representative from OIFE

Our Gala Award Ceremony presented by Trustee, Vice Chairman John Phillips and member Steve Edney saw us present a succession of worthy winners with trophies, as well as having live performance from the Baskingstoke Gang Show of the single “In Our Bones“.

Awards Presented were:

The OI Can Award

Tyler Ridley

Outstanding Long Service Award

Mildred Price

Young Ambassador Award

Layla Allsop

Professional Services Award

Jones Day Solicitors

Awareness Raising Award

Max Edney

Ambassadorial Award

Lord Kevin Shinkwin


Sunday morning Cool Bones kids and their families took part in Laser Tag whilst other conference delegates experienced Graffiti Art.  We also provided updates and spoke about progress in the areas of PIP and Adult Services consultations which are ongoing with members.


Full highlights of the weekend can be viewed in our gallery.