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Institute of Genetics & Cancer – Shining a Light on Osteogenesis imperfecta

  • Posted on May 18, 2021

Institute of Genetics and Cancer Public Engagement ONLINE EVENT – People Living with Osteogenesis Imperfecta (Brittle Bone Disease)

Tuesday 8 June 2021, 5-6pm

The Brittle Bone Society are deligted to be supporting this event.

Come and find out about research on Osteogenesis imperfecta and engage with researchers from CGEM, Institute of Genetics and Cancer, the Brittle Bone Society and Osteogenesis Imperfecta Federation Europe (OIFE).

Hear a Patient Voice – sharing their lived experiences and perspectives on what scientific research means to them.

REGISTER HERE

EVENT PROGRAMME

Tuesday 8 June 2021, 5-6pm

17:00 – 17:05 Welcome from Institute of Genetics and Cancer Host, Professor Tim Aitman, CGEM Director (Centre for Genomic and Experimental Medicine) within the IGC

17:05 – 17:15 Research update on Osteogenesis imperfecta & the TOPAZ Trial by Professor Stuart Ralston, CGEM & Scottish Champion (NHS Research Scotland) for Musculoskeletal conditions

17:15 – 17:25 Patient Voice: Mandy Grant who has OI and has recently joined the TOPAZ trial

17:25 – 17:30 Brittle Bone Society – Patricia Osborne, CEO: Shining a light on OI

17:30 – 17:35 Osteogenesis Imperfecta Federation (Europe) (OIFE) – Ingunn Westerheim, OIFE President: Who we are and what we do

17:35 – 18:00 Open Discussion – Q&A. Panel: Stuart, Mandy, Patricia & Ingunn

18:00 Event closed by Host, Professor Tim Aitman, CGEM Director