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Northern Ireland Rare Disease Partnership: Autumn Conference

  • Posted on Oct 12, 2018

Our good friend Christine Collins of the Northern Ireland Rare Disease Partnership (NIRDP) asked us to share this event with you:

NIRDP AGM and Autumn Conference is on 25 October, from 3pm to 5pm in the Grosvenor Hall, Donegall Street, Belfast (just across the street from the Great Victoria Street Bus and Train stations; and the Europa Hotel, so very easy to access).

Any Brittle Bone people would be very welcome indeed: we will have presentations by our new Big Lottery Funded Support staff, Tanya and Ian; from the Public Health Agency’s  “10k Voices” continuous Patient Survey Unit, on their findings so far in relation to rare disease patient experiences; from the Neurological Care Co Ordinators on their work; and also from the NI Medical Genomics Centre on their work and plans.

For more information please visit: