The weekend of 7th – 9th April saw the 7th annual VOICE event held in Sheffield. Here are some of the thoughts from the delegates:
“Voice 2017 was a huge success. The weekend commenced on Friday with an evening meal and pub quiz. Saturday was an early start with a presentation from Dr. Jenny Walsh about current research for adults with OI including the TOPaZ study. Penny Clapcott spoke about her work with the RUDY project including her trip to Switzerland. The Occupational Therapy team from Sheffield Children’s Hospital held discussions about independent living, with topics such as university, driving and PA’s all being addressed. They also held a workshop on exercise and physical activity. Lizzie Williams talked about her sporting achievements. After lunch, the Brittle Bone Society held a workshop about the history of the charity and held discussions around the 50th year celebration planning. The day drew to a close with Prof Bishop talking about research and patient involvement.
“On Sunday, Blue Hat Teambuilding facilitated a workshop session called Making the News where we were put into 2 groups to discuss the BBS 50th year celebrations and what VOICE means to us.
“Many of us have been supporting the Brittle Bone Society in various ways, we have been doing this by raising awareness and fundraising for the charity to help fund equipment, wheelchairs and weekend conferences held throughout the year. We have organised bake sales, sponsored walks, swims and marathons to raise this essential money that is needed to help what we estimate to be 5000 people in the UK with OI.
“Many of us are also involved in research like the RUDY study which is a 5-year study monitoring what the lives of people with OI are living with and how we are doing like how pain levels are and how many fractures we have had throughout the course of the year.
“Overall VOICE 2017 was a weekend to remember and we can’t wait for the 50th anniversary next year.”