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Events blog: External Events

Quality of Life 4 OI International Conference

  • Posted on Nov 27, 2019

BBS staff and Trustees attended QoL conference in Amsterdam This was a 4 day International conference hosted by a coalition of OI organisation and medical professional coordinated by the Research Foundation Care4BrittleBones. The BBS wereMore >

Genetic Alliance UK Annual Conference 2019

  • Posted on Nov 1, 2019

We were delighted that Gem Turner was able to represent the Brittle Bone Society recently at the Genetic Alliance UK Annual Conference and AGM. Read on to hear all about Gem’s account of the day.More >

Northern Ireland Rare Disease Partnership: Autumn Conference

  • Posted on Oct 12, 2018

Our good friend Christine Collins of the Northern Ireland Rare Disease Partnership (NIRDP) asked us to share this event with you: NIRDP AGM and Autumn Conference is on 25 October, from 3pm to 5pm inMore >

Findacure Rare Showcase

  • Posted on Oct 10, 2018

The BBS team attended the Findacure Rare Showcase in Glasgow on Wednesday 10th October, 2018. Patient groups, healthcare professionals, pharmaceutical companies, and the life sciences industry came together to network and discuss rare conditions, sharing theirMore >

RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital (RNOH) and fought off the “beast from the east” to get there, albeit arriving a little later than expected. The event wasMore >