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Events blog: External Events

Northern Ireland Rare Disease Partnership: Autumn Conference

  • Posted on Oct 12, 2018

Our good friend Christine Collins of the Northern Ireland Rare Disease Partnership (NIRDP) asked us to share this event with you: NIRDP AGM and Autumn Conference is on 25 October, from 3pm to 5pm inMore >

Findacure Rare Showcase

  • Posted on Oct 10, 2018

The BBS team attended the Findacure Rare Showcase in Glasgow on Wednesday 10th October, 2018. Patient groups, healthcare professionals, pharmaceutical companies, and the life sciences industry came together to network and discuss rare conditions, sharing theirMore >

RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital (RNOH) and fought off the “beast from the east” to get there, albeit arriving a little later than expected. The event wasMore >

Celebrating Rare Disease Day at Scottish Parliament

  • Posted on Mar 1, 2018

The Brittle Bone Society attended the Scottish Parliament on 1st March to celebrate Rare Disease Day. Professor Stuart Ralston showcased the work involved in the TOPaZ trial and his collaboration with the Brittle Bone Society. During theMore >

Rare Disease UK Reception at Scottish Parliament

  • Posted on Feb 21, 2018

Communications and Marketing Officer Karen, and Intern Jhon attended the Scottish Parliament on 20th February to celebrate Rare Disease Day arranged by Rare Disease UK. We heard from a range of speakers including Bob DorisMore >