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Events blog: External Events

RNOH Event

  • Posted on Mar 2, 2018

Coreen our Support Development Officer attended the Rare Disease Day event held at Royal National Orthopaedic Hospital (RNOH) and fought off the “beast from the east” to get there, albeit arriving a little later than expected. The event wasMore >

Celebrating Rare Disease Day at Scottish Parliament

  • Posted on Mar 1, 2018

The Brittle Bone Society attended the Scottish Parliament on 1st March to celebrate Rare Disease Day. Professor Stuart Ralston showcased the work involved in the TOPaZ trial and his collaboration with the Brittle Bone Society. During theMore >

Rare Disease UK Reception at Scottish Parliament

  • Posted on Feb 21, 2018

Communications and Marketing Officer Karen, and Intern Jhon attended the Scottish Parliament on 20th February to celebrate Rare Disease Day arranged by Rare Disease UK. We heard from a range of speakers including Bob DorisMore >

9th International Conference On Children’s Bone Health (ICCBH)

  • Posted on Feb 2, 2018

The ICCBH are delighted to announce that they will return to Salzburg for the 2019 conference. This follows on from last year’s successful conference in Würzburg, Germany, which was attended by over 400 delegates fromMore >

Bristol Children’s Hospital Family Day

  • Posted on Dec 7, 2016

The Bristol Royal Hospital for Children Metabolic Bone team hosted an OI family day in October in Bristol. Coreen, the BBS Support Development Officer, was delighted to be able to attend and meet up with soMore >