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Personal Independence Payments (PIP) Survey

People affected by Osteogenesis Imperfecta may deal with the Government welfare system to assist with the extra costs associated with the condition. Before 2014, this assistance was received through a Disability Living Allowance (DLA), but since then a new welfare programme of Personal Independence Payments (PIP) has been introduced.

The process involves rigorous assessments that many of our members and supporters have faced troubles with, and as your patient support group, we want to do something about that. We are now in a position to present your problems to government officials thanks to the information provided by you in our PIP Experience Survey.

Once we have analysed and presented this data to policymakers, we will return to update you on the campaign. A massive thank-you to everyone who took the time to complete our survey, your responses are invaluable and your voice is being heard.