Menu Close


MAB Meeting

  • Posted on Mar 9, 2020

The Brittle Bone Society’s Trustees and staff met with members of the charity’s own Medical Advisory Board in March to discuss a number of topics including progress on their hopes to secure an adult rare bone service with the NHS, and review outcomes to various consultations and the latest NHS approved factsheets and podcasts.

With representatives present from the Birmingham Children’s Hospital, Bristol Royal Hospital for Children, Great Ormond Street Hospital, Northern General Hospital in Sheffield, the Nuffield Department of Orthopaedics at the University of Oxford, the Royal National Orthopaedic Hospital, and Sheffield Children’s Hospital, these meetings are a unique opportunity for the Brittle Bone Society to relay the issues that matter most to the OI community to highly skilled healthcare professionals covering Paediatrics, adult care, dentistry, orthopaedics, genetics and also allied healthcare professionals in physiotherapy and specialised nursing.

Additionally, it is an opportunity for the Brittle Bone Society to be kept up-to-date about the latest developments relevant to the treatment of Osteogenesis Imperfecta, and how best we can work together to achieve good outcomes.