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Meetings with key stakeholders

  • Posted on Feb 4, 2020

Patricia Osborne, Chief Executive, Vice Chair John Phillips and new staff member Richard Daglish visited The Lord Shinkwin in the Palace of Westminster, to provide updates especially on the Conditions Insights Booklet (relating to our survey about PIP). And to discuss other events in the calendar year. Patricia also met with Social Security Scotland Officer Matt Creaney in Dundee as Scotland prepares for benefits becoming devolved.

Our thanks to Capita who encouraged us to share what we have learned with other agencies and who agreed we let them see the progress made with this new booklet. BBS are also delighted that other rare bone groups are looking to have their conditions documented as well.

Mr Creaney of Social Security Scotland, who has now listed us on their website, said:

It was a great pleasure to meet and discuss how we might work together and utilise the Brittle Bone Society’s briefing paper on Osteogenesis Imperfecta (OI) in our training for colleagues who will administer Social Security Scotland’s new disability assistance. As discussed I am very keen to ensure that the voice of those who are affected by disability or illness is heard throughout our training solutions to help us ensure that we provide a service that treats people with dignity, fairness and respect. This is important in understanding how peoples’ lives are impacted and also how we might improve on the services that we provide in accessing social security”.