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Category: Open

BoostB4: Research study exploring views and attitudes to stem cell therapy for Osteogenesis Imperfecta

  • Posted on Feb 12, 2018

A research study called Boost Brittle Bones Before Birth (BOOSTB4)  investigated the possibility of using stem cell therapy as a treatment for severe OI. The study was undertaken by researchers at Great Ormond Street HospitalMore >

Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial

  • Posted on Feb 13, 2018

**Update: Please note, recruitment is temporarily suspended for TOPaZ. However, enrolled participants are still continuing within the trial. If you have a diagnosis of Osteogenesis Imperfecta (OI) and are aged 18 years or over, youMore >

LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fracturesMore >

RUDY Study

  • Posted on Feb 14, 2018

Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-drivenMore >

Osteogenesis Imperfecta Foundation (OIF)

  • Posted on Sep 7, 2018

The OIF is the BBS equivalent for the United States of America, and they list studies over on their website. The success of clinical studies of a rare disorder like osteogenesis imperfecta (OI) depend onMore >

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