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LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fracturesMore >

RUDY Study

  • Posted on Feb 14, 2018

Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-drivenMore >

Osteogenesis Imperfecta Foundation (OIF)

  • Posted on Sep 7, 2018

The OIF is the BBS equivalent for the United States of America, and they list studies over on their website. The success of clinical studies of a rare disorder like osteogenesis imperfecta (OI) depend onMore >

Whole Genome Sequencing Survey

  • Posted on Oct 8, 2018

Share your views on Whole Genome Sequencing and the NHS Genomics England has commissioned Genetic Alliance UK to seek the views of patients and carers around the introduction of Whole Genome Sequencing (WGS) into theMore >

BoostB4: Research study exploring views and attitudes to stem cell therapy for Osteogenesis Imperfecta

  • Posted on Feb 12, 2018

A research study called Boost Brittle Bones Before Birth (BOOSTB4)  investigated the possibility of using stem cell therapy as a treatment for severe OI. The study was undertaken by researchers at Great Ormond Street HospitalMore >

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