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Category: Open

BoostB4: Research study exploring views and attitudes to stem cell therapy for Osteogenesis Imperfecta

  • Posted on Feb 12, 2018

A research study called Boost Brittle Bones Before Birth (BOOSTB4)  investigated the possibility of using stem cell therapy as a treatment for severe OI. The study was undertaken by researchers at Great Ormond Street HospitalMore >

Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial

  • Posted on Feb 13, 2018

If you have a diagnosis of Osteogenesis Imperfecta (OI) and are aged 18 years or over, you may be eligible for the Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial acrossMore >

Asteroid Study

  • Posted on Feb 13, 2018

Mereo BioPharma is sponsoring a multi-centre international clinical trial to study the effects of anti-sclerostin therapy drug Setrusumab (previously called BPS804) on bone in OI. The study has now started recruiting patients in the UK, andMore >

LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fracturesMore >

RUDY Study

  • Posted on Feb 14, 2018

Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-drivenMore >

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