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Rare Disease Day 2020 Holyrood Reception

  • Posted on Mar 10, 2020

The BBS team was delighted to attend the Rare Disease Day reception held at the Scottish Parliament on 4 March 2020.

Joining representatives from charities across Scotland, those in attendance listened to first-hand accounts of the unique difficulties faced by those with rare conditions like Osteogenesis Imperfecta.

With over 300 million people in the world living with rare conditions today, Rare Disease Day serves as a powerful means to highlight the need for urgent action and further support from government.