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Physical function and soft-tissue health in OI

  • Posted on Dec 7, 2018

Scientists in Manchester are recruiting adults aged 18-35 with osteogenesis imperfecta (OI) type I to take part in a study funded by the Brittle Bone Society. What is the aim of the study? This study will examineMore >

ABCD Study

  • Posted on Nov 29, 2018

As many members and supporters are aware, Dr Meena Balasubramanian is conducting a research project funded by the BBS titled Assessing the Balance of Cost and Determining the Experiences of Families in Paediatric Osteogenesis ImperfectaMore >

Whole Genome Sequencing Survey

  • Posted on Oct 8, 2018

Share your views on Whole Genome Sequencing and the NHS Genomics England has commissioned Genetic Alliance UK to seek the views of patients and carers around the introduction of Whole Genome Sequencing (WGS) into theMore >

Pain Study by Fundación Ahuce

  • Posted on Sep 13, 2018

A STUDY ABOUT PAIN IN OI This study closed in January 2019 – the results should be available by the end of 2019. The Spanish research foundation Fundación Ahuce launched a  research project in collaborationMore >

Osteogenesis Imperfecta Foundation (OIF)

  • Posted on Sep 7, 2018

The OIF is the BBS equivalent for the United States of America, and they list studies over on their website. The success of clinical studies of a rare disorder like osteogenesis imperfecta (OI) depend onMore >

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