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RUDY Study

  • Posted on Feb 14, 2018

Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-drivenMore >

The 100,000 Genomes Project

  • Posted on Feb 14, 2018

The 100,000 Genomes Project is being delivered by Genomics England (funded by the Department of Health and Social Care) to find the genes that cause rare diseases such as Osteogenesis Imperfecta. Project Status The 100,000More >

LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fracturesMore >

Asteroid Study

  • Posted on Feb 13, 2018

Mereo BioPharma is sponsoring a multi-centre international clinical trial to study the effects of anti-sclerostin therapy drug Setrusumab (previously called BPS804) on bone in OI. The study has now started recruiting patients in the UK, andMore >

Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial

  • Posted on Feb 13, 2018

If you have a diagnosis of Osteogenesis Imperfecta (OI) and are aged 18 years or over, you may be eligible for the Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial acrossMore >

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