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Osteogenesis Imperfecta Foundation (OIF)

  • Posted on Sep 7, 2018

The OIF is the BBS equivalent for the United States of America, and they list studies over on their website. The success of clinical studies of a rare disorder like osteogenesis imperfecta (OI) depend onMore >

RUDY Study

  • Posted on Feb 14, 2018

Rudy is a study in rare diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford, Rudy aims to transform clinical care for participants through patient-drivenMore >

The 100,000 Genomes Project

  • Posted on Feb 14, 2018

The 100,000 Genomes Project is being delivered by Genomics England (funded by the Department of Health and Social Care) to find the genes that cause rare diseases such as Osteogenesis Imperfecta. Project Status The 100,000More >

LINK Clinical Trial

  • Posted on Feb 13, 2018

The Brittle Bone Society would like to make you aware of the LINK Study which aims to find out what impact the investigational medication has on the participant’s bone mineral density and the frequency of fracturesMore >

Treatment of Osteogenesis Imperfecta with Parathyroid hormone and Zoledronic Acid (TOPaZ) Trial

  • Posted on Feb 13, 2018

**Update: Please note, recruitment is temporarily suspended for TOPaZ. However, enrolled participants are still continuing within the trial. If you have a diagnosis of Osteogenesis Imperfecta (OI) and are aged 18 years or over, youMore >

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