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Factsheets

Factsheets

You can download our factsheets for free by clicking on the links below.

Hard copies can be sent out free of charge, however, a contribution towards production costs and postage will enable the Brittle Bone Society to continue its vital work.

All our factsheets are endorsed by healthcare professionals from the NHS Centres of Excellence, including the Paediatric Osteogenesis Imperfecta National Team (POINT), and by our Medical Advisory Board.  Our resources are designed to give anybody affected by OI, and professionals working with someone who has OI, a source of reliable information.

General information

Information about Osteogenesis Imperfecta
Bisphosphonate Treatment
Dental Care
Hearing Loss
Adults with OI

Genetics and Osteogenesis Imperfecta

To find a Medical Genetics Centre near you, click here.

Information for children and schools

Emotional Wellbeing
Caring For An Infant With OI
Managing Fractures
Wheelchairs
Advice for Nurseries and Pre-Schools
Advice For Primary Schools
Advice For Secondary Schools
Participation in Physical Education (PE)


This information should not serve as medical advice or instruction. Please always consult your healthcare professional in the first instance.