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Update on Covid19 and Shielding Guidelines from Brittle Bone Society Medical Advisory Board

  • Posted on Mar 25, 2020

COVID 19 update for people with rare bone disorders.

Update 25.3.2020

Some of you may have received letters about being someone who’s extremely vulnerable to coronavirus.

OI does not affect the immune system. We recognise that some people with OI may be extremely vulnerable and not included in the list. These includes people with severe spinal curvature, also known as kyphosis or scoliosis, or abnormal chest wall shape that increases the risk of lung problems.

These people are included in the NHS guidance for extremely vulnerable group because they:

“have a severe respiratory condition – including cystic fibrosis, severe asthma or severe COPD (Chronic Obstructive Pulmonary Disease)”

This includes:

– all people with type III OI and other severe forms of OI

– any other person with a rare bone disease who:

1) those with abnormal chest shape or breathing problems that has required medical attention

2) need breathing / respiratory support

3) have been advised to have the pneumonia vaccine because of their rare bone disease

4) has been told by their specialist centre they have severe spinal curvature

If you have not had a letter and think you fit into one of these categories please visit to register for support and help during the pandemic.

You should select: Yes, I have a medical condition that makes me extremely vulnerable to coronavirus and then follow all the online advice as much as possible.

For other people with other types of OI, please keep checking the NHS website as guidance is changing very quickly.

Stay safe and best wishes during these troubling times.

Medical Advisory Board.

If you are a resident of the Republic of Ireland, please click here>> for up-to-date information.