Share your views on Whole Genome Sequencing and the NHS
Genomics England has commissioned Genetic Alliance UK to seek the views of patients and carers around the introduction of Whole Genome Sequencing (WGS) into the NHS. They would also like to hear about people’s experiences of taking part in the 100,000 Genomes Project. This information will be used by Genomics England to inform the launch of mainstream WGS, as part of the new NHS Genomic Medicine Service.
Who can take part?
If you are aged 18 or over, are a patient or carer of someone with a rare or undiagnosed condition, and are based in the UK, we would be grateful if you could take part in this survey. You might have taken part in the 100,000 Genomes Project but this is not necessary.
What does taking part involve?
Taking part will involve completing a short, online survey which will ask about your thoughts on WGS and the NHS. If you have taken part in the 100,000 Genomes Project, it will also ask about this experience.